News
10/6/2016

CRG and CEXS-UPF: GA4GH presents vision, model for genomic and clinical data sharing

CRG and CEXS-UPF: GA4GH presents vision, model for genomic and clinical data sharing


News from CRG and CEXS-UPF


In today’s Science, the Global Alliance for Genomics and Health (GA4GH) calls for a federated data ecosystem for sharing genomic and clinical data. The authors, which include Arcadi Navarro, EGA team leader at the CRG and Professor and DCEXS-UPF, as well as a diverse team of international leaders in academia, research, medicine, and industry, argues that a common framework of principles, protocols, and interoperable technical systems are necessary to enable responsible and effective data sharing.

GA4GH was established in 2013 to bring the community together to build the tools and establish the standards necessary to achieve that goal. Today, it counts more than 400 organizations and more than 700 individuals in its membership, which spans more than 70 countries. “These stakeholders are working together across traditional boundaries to create the common framework that will allow us to make best use of the millions of genome sequences that currently sit in siloed databases around the globe,” says Peter Goodhand, GA4GH Executive Director and a member of the author group.

“Sharing data is not only desirable to accelerate progress, it is a necessary condition. There will be no progress without sharing and the GA4GH is ideally positioned to raise awareness about data sharing and to help make it technically feasible and safe,” said Navarro, a member of the GA4GH Steering Committee.

More information:
CRG Website and CEXS-UPF Website