News from CRG
The use of genomic data in biomedical research has made it possible to advance in the knowledge of biologic processes and of a number of diseases. But the leap from research to clinical practice requires a broad debate on the challenges and opportunities offered by this new discipline, as well as the importance of safely preserving and sharing this kind of data. “From the Centre for Genomic Regulation (CRG) we work to decode and comprehend the information contained in the genome, and from the European Genome and Phenome Archive (EGA) we work to ensure these data remain safe, and within reach of the scientific community. We have to keep researching but it is also absolutely necessary that scientists share this knowledge with the medical community for the return to society to be real, efficient and agile," stated Luis Serrano, director of the CRG.
With this goal, the seminar, “Impact of genomic data on health: the Role of the European Genome and Phenome Archive (EGA)", organized by La Caixa, and the Centre for Genomic Regulation with the support of Elixir España, will seek to raise awareness and spark debate among the scientific, medical and social communities that makes it possible to drive medical genomics in Spain.
EGA is a specialized repository that facilitates the responsible use of data, following the ethical principles on human genomic data, promoting the use of resources by offering them for research, and guaranteeing their long-term availability. The EGA currently stores nearly 4,000 genomic data sets and over 1,500 studies, coming from about 800,000 people. EGA data occupy over 4.5 petabytes (4,500,000 gigabytes) and have nearly 12,000 users around the world who consult and use them.