News from CRG
Over 70 leading health care, research, and disease advocacy organizations that involve colleagues all across the world have taken the first steps to form an international alliance dedicated to enabling secure sharing of genomic and clinical data. Among these institutions, there are 3 Spanish centers: the Centre for Genomic Regulation (CRG), the Centro Nacional de Análisis Genómico (CNAG) and the Spanish National Cancer Research Centre (CNIO).
The cost of genome sequencing has fallen one-million fold, and more and more people are choosing to make their genetic and clinical data available for research, clinical, and personal use. However, interpreting these data requires an evidence base for biomedicine that is larger than any one party alone can develop, and that adheres to the highest standards of ethics and privacy. These organizations recognize that the public interest will be best served if we work together to develop and promulgate standards (both technical and regulatory) that make it possible to share and interpret this wealth of information in a manner that is both effective and responsible.
CRG press release